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DTSTART:20220327T010000
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DTSTART;TZID=Europe/Vienna:20230201T130000
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DTSTAMP:20260903T100959Z
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UID:88166-1675256400-1675351800@dev3.bbmri-eric.eu
SUMMARY:Online Workshop: Implementing Genomic Research Projects
DESCRIPTION:Learn how to address key issues in genomic research in this two-day online workshop on Implementing Genomic Research Projects\, jointly organised by BBMRI-ERIC with Easi Genomics on: \nWednesday\, 1 February (13-16:30 CET) \nand Thursday\, 2 February (13-15:30 CET) \nThis workshop will gives participants a fantastic opportunity to learn more about genomic data ethics\, legal issues\, privacy and data protection\, data standardisation\, and how to implement standardised sample workflows or deposit genomic data in public repositories. \nDetails and booking: Workshop on Implementing Genomic Research Projects | EASI-Genomics
URL:https://dev3.bbmri-eric.eu/events/online-workshop-implementing-genomic-research-projects/
CATEGORIES:External
ATTACH;FMTTYPE=image/jpeg:https://dev3.bbmri-eric.eu/wp-content/uploads/25Jan2023_EASIGenomics-scaled-e1674724952704.jpg
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DTSTART;TZID=Europe/Vienna:20230208T170000
DTEND;TZID=Europe/Vienna:20230208T180000
DTSTAMP:20260903T100747Z
CREATED:20260903T100625Z
LAST-MODIFIED:20260903T100747Z
UID:88164-1675875600-1675879200@dev3.bbmri-eric.eu
SUMMARY:Webinar: Biobanks and scientific research - scientific opportunities and challenges for privacy
DESCRIPTION:What regulatory\, privacy\, and secondary use aspects due researchers need to consider when using patient data for research purposes? \nIn this online panel discussion (held in Italian)\, speakers Dr. Ilaria Anna Colussi (BBMRI-ERIC – Data Protection Specialist)\, Laura Liguori (Portolano Cavallo Partner) and Elisa Stefanini (Portolano Cavallo Partner) address the main challenges researchers are facing regarding sample biology on the European and Italian levels. \nDate: 8 February 2023\, 5 pm (CET) \nRegister here \nShare via Twitter \nShare via LinkedIn
URL:https://dev3.bbmri-eric.eu/events/webinar-biobanks-and-scientific-research-scientific-opportunities-and-challenges-for-privacy/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://dev3.bbmri-eric.eu/wp-content/uploads/Ilaria_Colussi_8Feb2023-e1674731875551.png
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DTSTART;TZID=Europe/Vienna:20230209T140000
DTEND;TZID=Europe/Vienna:20230209T150000
DTSTAMP:20260903T100316Z
CREATED:20260903T100316Z
LAST-MODIFIED:20260903T100316Z
UID:88162-1675951200-1675954800@dev3.bbmri-eric.eu
SUMMARY:Webinar: The case of data reuse - ethical\, legal\, and societal issues in international genomic data access and sharing
DESCRIPTION:Health data collected in cohort studies help researchers generate knowledge generation and advance biomedical research. But what happens when these data are used for something other than the initial purpose? \nIn this webinar\, BBMRI social scientist Dr. Melanie Goisauf and health lawyer Emmanuelle Rial-Sebbag address  ethical\, legal\, and societal questions regarding the sensitivity of genomic data sourced from vulnerable and ethnic groups\, such as African genetic data and material. \nDate: 9 February 2023\, 2-3 p.m. (UTC) \nOnline via Zoom \nRegistration link \nThe speakers will address challenges associated with the reuse of health/genomic data in CINECA from the ELSI perspective and the FAIR principles\, highlighting GDPR provisions and their interpretations\, national laws\, relevant literature\, and outcomes of recent stakeholder engagement workshops.
URL:https://dev3.bbmri-eric.eu/events/webinar-the-case-of-data-reuse-ethical-legal-and-societal-issues-in-international-genomic-data-access-and-sharing/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://dev3.bbmri-eric.eu/wp-content/uploads/Webinar_9Feb2023.png
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