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Webinar: The case of data reuse – ethical, legal, and societal issues in international genomic data access and sharing
Health data collected in cohort studies help researchers generate knowledge generation and advance biomedical research. But what happens when these data are used for something other than the initial purpose?
In this webinar, BBMRI social scientist Dr. Melanie Goisauf and health lawyer Emmanuelle Rial-Sebbag address ethical, legal, and societal questions regarding the sensitivity of genomic data sourced from vulnerable and ethnic groups, such as African genetic data and material.
Date: 9 February 2023, 2-3 p.m. (UTC)
Online via Zoom
The speakers will address challenges associated with the reuse of health/genomic data in CINECA from the ELSI perspective and the FAIR principles, highlighting GDPR provisions and their interpretations, national laws, relevant literature, and outcomes of recent stakeholder engagement workshops.