Ethical, legal and societal issues in international data sharing

Share

About Course

The goal of this webinar will be to present the first findings of the ELSI activities in the CINECA project, ranging from questions of ethics of data sharing across continents to legal basis of secondary processing of personal data, consent requirements and vulnerable groups or public and stakeholders’ attitudes toward sharing of genomic and health related data for research.

The CINECA webinar series aims to discuss ways to address common challenges and share best practices in the field of cohort data analysis, as well as distribute CINECA project results. All CINECA webinars include an audience Q&A session during which attendees can ask questions and make suggestions. Please note that all webinars are recorded and available for posterior viewing.

Speakers: Éloïse Gennet (INSERM) and Melanie Goisauf (BBMRI-ERIC)

Show More

What Will You Learn?

  • the first findings of the ELSI activities in the CINECA project
  • ethics of data sharing across continents
  • legal basis of secondary processing of personal data
  • consent requirements and vulnerable groups
  • public and stakeholders’ attitudes toward sharing of genomic and health related data for research

Course Content

Webinar

  • Video
    55:57