News
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Denmark, Lithuania and Switzerland join BBMRI-ERIC as Full and Observer Members
Denmark, Lithuania and Switzerland have been officially confirmed as members of the Biobanking and BioMolecular resources Research Infrastructure – European Research Infrastructure Consortium (BBMRI-ERIC). Lithuania and Switzerland moved from Observers to full Members and Denmark joined as an Observer. Membership was approved by the BBMRI-ERIC Assembly of Members in June 2023 with membership status officially…
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New podcast and video: ELSI Dialogues – An Introduction to the Belgian Biobank Legislation
Introduction Biobank legislation is not harmonised at the European Union level, and the Member States have taken considerably divergent approaches in how they regulate the field. Whereas some countries do not have specific regulations, others have adopted complex biobank laws. This episode of ELSI Dialogues aims to present the unique legal framework for biobanking that…
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New Podcast Episode: What is a Patient Pillar? How Patient Representatives are Shaping BBMRI-ERIC and Biobanking – Part One
“Cancer is traumatising, and you want to forget it as soon as possible, but some of us believe our experiences can be useful for others.” This first of a two-part episode looks at the work of the BBMRI Stakeholder Forum Patient Pillar that brings together patient organisations from across Europe to help shape BBMRI’s biobanking…
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New Podcast Episode: What is a Patient Pillar? Eric Vermeulen, New Chair, Explains – Part Two
“This tissue is really representing the patient and that’s what I find very interesting about biobanking. You don’t need to be there to be in research.” This is the second of a two-part episode exploring the work of the BBMRI Stakeholder Forum Patient Pillar that brings together patient organisations from across Europe to help shape…
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BBMRI-ERIC kicks off 10 year anniversary by supporting young scientists
This article is 938 words and is a four-minute read. “Cells, surprisingly aesthetic and intricate machines, fine-tuned by evolution, form a basis for the function of our bodies. I enjoy being able to contribute to the discovery of these beautiful processes.” (Katerina Jurikova, young scientist) Inspiring young scientists to utilise biobanking resources for future ground-breaking…
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Common Provenance Model: BBMRI led ISO/TS 23494-1:2023 released
This article is 1,014 words – a ten-minute read. During the last decade, we have witnessed reproducibility issues in life sciences. There is strong evidence that the issues are caused by poor documentation of the samples and data generation techniques applied to the samples to generate data. This is finally being addressed. The BBMRI-ERIC team…
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Joint Statement: Health organisations define EHDS’ opt out required for life saving research
On 6 June, BBMRI-ERIC joins together with 31 other health stakeholders to share views on specific recommendations for a potential opt-out mechanism in the future EHDS. These organisations and initiatives have joined forces because they all share the view that health data is precious and a renewable resource that can power decision-making for clinical care,…
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Biobank Łukasiewicz – PORT awarded the BBMRI-ERIC Quality Label
“Receiving the Quality Label is a very important step for our Biobank in establishing its position, not only in Poland, but also in the wider European biobanking landscape.” Biobank Łukasiewicz – PORT, located in the Łukasiewicz Research Network – PORT Polish Center for Technology Development institute in Wrocław, has been awarded a BBMRI-ERIC Quality Label. The…
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Two new ELSI genomic research relevant publications released
The BBMRI-ERIC ELSI team are delighted to share two new genomic research relevant publications: Published in BioSocieties, ‘Post-identifiability in changing sociotechnological genomic data environments‘ explores the meaning of privacy in an increasingly datafied research environment in which the authors analysed genomic identifiability as a systematic data issue and argue that a new conceptualisation is needed. This…
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The canSERV project seeks Personalised Oncology and Molecular Tumour Board experts for European networks
The EU cluster project canSERV is inviting anyone involved in a Molecular Tumour Board (MTB) – e.g., physicians, scientists, patient representatives, ethicists – to join the European Network for Personalised Oncology (ENPO) and its European Molecular Tumour Board Network (EMTBN). The European Network for Personalised Oncology (ENPO) aims to provide state-of-the-art guidance and support to accelerate the implementation of personalised oncology. Through…
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The canSERV Consortium announces its first Challenge-Call on “Advancing Personalised Oncology”.
Deadline for submission is 25th of April 2023, 12:00 CEST. Cancer Researchers in, and outside, the EU are invited to apply for free access to cutting-edge transnational services with an indicative overall budget of EUR 500,000. The aim of this call is to accelerate knowledge gain in personalised oncology with specific emphasis on multi-level data-based treatment guidance…
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Cyprus and Qatar join BBMRI-ERIC as full and observer members
This article is 931 words and a three-minute read. Cyprus and the State of Qatar have been officially confirmed as members of the Biobanking and BioMolecular resources Research Infrastructure – European Research Infrastructure Consortium (BBMRI-ERIC). Cyprus moved from Observer to full Member and the State of Qatar has joined as an Observer. Membership was approved…